What a Miserable Day!

Soph has been having some random jerks for a while. It started off during feeds and now sometimes she does it before sleeping too. They are like little hiccups in her lower body. We told the pediatrician about it and she referred us to a neurologist. We went down for an appointment on Tue and he suggested that Soph did an EEG. Some scan thingy where they paste a bunch of electrodes on your head and measure the brain waves. They want to check for infantile spasms. Wah sounds serious.
The instructions for the scan was terrible. During the scan she has to stay asleep. So the night before we had to keep her up till midnight and then let her sleep till 5am and then make her stay awake all the way till her scan at around 9am. It was tiring for everyone! She knocked out around midnight with the grab ball still in her hand. Poor girl.

Fell back asleep trying to roll over and scoot

At the hospital we put her to sleep. The technician gave us a time limit of 45minutes-so stressful! We gave her a bottle then lied down with her and she knocked out in about 5 minutes. Easy peasy I thought. Then the technician came in and started making markings on her head. That woke her up and she would not go back to sleep. Grr I did not know that she would be moving her head around so much.
Attempt number two to sleep. I lied down next to her and she tossed and turned. She looked kind of awake and I thought she was never going back to sleep. But eventually she did and I thanked my lucky stars. The technician came back in and she started attaching those electrodes to her head. I put my hand on her body to help her stay asleep but she was simply adjusting her head too much! After she had a bunch of attachments on her head she woke up and was bright eyed! And the technician was not done yet. I wanted to curse and swear at the situation. The technician said Soph did not come in sleep deprived enough. I was pretty upset because I thought we tried hard enough. I explained to her that baby's sleep cycle is only 45 minutes, so if she had to do all the markings and attaching the electrodes and still need another 20 minutes for measurements, I do not think we would be able to do that. And Soph was a light sleeper too. I did not like how she was so unsympathetic about the situation and compared how other babies and kids were able to do it because they usually come in crying, hungry and tired and crashed right after they drink their milk. So we could not carry on with the scan because it was out of the time limit. They had to reschedule.
Back at home, she was more cranky and was unable to sleep well. I had to carry her to sleep (usually not the case) and she would wake up if I tried to lower her into the crib. Eventually she adjusted and had better naps towards the end of the day.
We sent more updated videos of Soph's jerking to the neuro's office, hoping he would say she is ok and did not have to continue with the scan. But he persisted and wanted it to be completed by this week just to rule out the possibility. It was good that they were so on the ball with it. Poor Soph has to endure another sleepless night tonight because the scan is rescheduled to tomorrow. But ultimately I hope the scan shows that she is OK! She is still growing, babbling, reaching for things, rolling everywhere and even lunging foward for toys now. When I researched on infantile spasms, the information online seems very scary!